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Medical Cannabis - Alfie Dingley

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On 22 Feb 2018 at 5:00pm Charlie Deacon wrote:
You may have heard the case of my nephew who has severe PCDH19 epilepsy, one of only 6 boys in the world with the condition. He has just returned from the Netherlands after successful treatment with whole plant cannabis oil, yet he is banned from using this here.

Before this treatment he had up to 48 A&E visits in a year, with 3000 seizures, only controlled by high doses of intravenous steroids. This robbed him of his childhood and could cause death or psychosis.

Google Alfie's Hope to find out more. In the meantime, please sign our petition attached if you can.

Even better please write to Maria Caulfield urging her to put pressure on the Home Office to reconsider and to vote with Paul Flynn's bill on medical cannabis tomorrow. There is a pre-written letter on a website called End Our Pain.

Many thanks in advance!!

Check it out here »
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On 22 Feb 2018 at 11:32pm Popeye wrote:
It is incredible how something like cannabis that is so medically beneficial in so many ways is still illegal.
Could it have something to do with big pharma by any chance?
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On 22 Feb 2018 at 11:48pm Theresa's Philip wrote:
Have e mailed our great MP, but no response - surprise, surprise - ditto Amber Rudd. What Tory scum.
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On 23 Feb 2018 at 12:50pm Pedro wrote:
A sensible debate on drugs is almost impossible in our society, as we consider cannabis to be foremost a "drug" when discussing it (with all its negative connotations, rather than more positive ones associated with government approved medical drugs that might have far more serious side effects) rather than a naturally occurring plant with medicinal benefits used for thousands of years and only very recently (in the grand scheme of human civilization) prohibited. People need to wake up and realise that the cannabis plant is not some sort of mythological Triffid....firstly its REAL and when used wisely, is extremely effective and in some cases life saving.

Naturally, I've backed this campaign and hope its a success and Alfie gets access to medical cannabis so he can live a normal and healthy life, rather than a life of debilitating convulsions due to terrible government policy, based on lies/distortions and hysteria, or influential pharmaceutical or other groups lobbying their own agenda to protect their profits.
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On 23 Feb 2018 at 2:17pm Incorrect wrote:
^^wrong again.
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On 23 Feb 2018 at 3:08pm Charlie Deacon wrote:
Disappointing to see the bill didn't even get a reading.
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On 23 Feb 2018 at 3:08pm Charlie Deacon wrote:
Thank you all for your ongoing report x
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On 23 Feb 2018 at 3:40pm Pedro wrote:
@ incorrect - please do explain why I am "wrong again"? The floor is all yours.....go for it.
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On 23 Feb 2018 at 4:03pm Pedro wrote:
@ charlie deacon, almost quarter of a million signatures though is impressive! Keep at 'em!

To be fair, the government are likely to do diddly squat on this (or at least act quickly enough), and the only viable solution is to just source the herb illegally. Although cannabis oil (cbd only) is available already in shops like holland & barrett and plenty of other places across the country, not sure if it would work on Alfie's specific condition. I'm guessing that has already been tried by your family, and presumably its not as effective as the oil provided by the Dutch medical authorities? Pot brownies or using a vapouriser on the herb would be the next best option should the government fail to act. I would be interested to hear from people outraged at the prospect of administering weed to a child, given its efficacy to relieve this poor child of traumatic seizures, and the significant research that backs up the neuro-protective properties of cannabis. But some people are just nuts and irrational.
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On 23 Feb 2018 at 4:22pm Annette Curtin-Twitcher wrote:
I've heard anecdotal accounts from many people saying that cannabis is the only thing that offers them pain relief from conditions like psoriatic arthritis, fibromyalgia and polymyalgia rheumatica.
I think Big Pharma is missing a trick tbh. They could make a fortune if they could develop a safe, effective, side-effect free analgesic from cannabis and get it licensed.
I don't understand why it's not available if it's been found safe and it works. So many people could benefit.
 
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On 24 Feb 2018 at 6:52am Sue wrote:
How does medicinal cannabis oil differ from CBD oil? It's cannabis in origin, but a available in some shops & on the web.
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On 24 Feb 2018 at 12:47pm wanderer wrote:
i doubt the law will change in this country ,just buy a grow tent set up from fleebay around £60 then go to link below and grow your own they are automatic type and only need soil light water to grow .yes others will moan but if you need then you need ,,,i do hope that i have not offended anyone

Check it out here »
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On 24 Feb 2018 at 12:49pm Jesus wrote:
A nice whack of cocaine would also help numb the pain of many ailments. Yes lets all start shooting up....sigh
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On 24 Feb 2018 at 2:00pm Purlease! wrote:
Jesus you are a wally. Unhelpful and moronic.
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On 24 Feb 2018 at 4:40pm Pedro wrote:
"Jesus" is indeed a trolling moron and in this case he probably doesn't have any other intentions than to be a provocative twit, BUT if they discovered therapeutic variants of what we consider as recreational "drugs", such as cocaine, LSD or ecstacy, then they should be considered for regulated medicinal use via a clean supply channel and administered by a professional.

There is certainly a lot of promising research and studies ongoing about the neural benefits of psychadellics like mushrooms and lsd to reduce depression and anxiety, as well as possible benefits to alzheimers and parkinsons patients. Ecstasy (MDMA) has also been used to treat those with PTSD successfully, and has been given some added credibility by The U.S. Food and Drug Administration designating MDMA as a “breakthrough therapy” for the treatment of post-traumatic stress disorder.

This is why a proper sensible, grown up discussion around drugs in general needs to occur, where people with open minds can look at the statistics and facts without being shouted down by narrow minded folks jumping to hysterical conclusions through decades of anti-drug propaganda fed to them. I'm not too optimistic that this is possible though....
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On 24 Feb 2018 at 5:23pm Depressed wrote:
Depression and anxiety cannot be cured by drugs. Just as your sad pathetic existence is not solved by your cannabis addiction.
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On 24 Feb 2018 at 5:55pm Pedro wrote:
@ Depressed, I guess you've not been observing the very recent mainstream news on studies literally this week that demonstrate how anti-depressant drugs are in fact effective in treating depression and anxiety. So, good timing!

Your post though and irrational vitriol behind it (as well as obvious vast gaps in knowledge), speaks volumes about your own mental wellbeing and state. I'm sorry that you feel the way you do. Drugs and/or therapy will probably be your best bet, and your GP can advise how to get you out of your negative and bitter mindset. Deliberate and persistent trolling is a warning sign that you may need some help and its not too late.
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On 24 Feb 2018 at 6:53pm Ivor Biggin wrote:
Mine is still bigger than yours
 
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On 1 Mar 2018 at 10:30am Theresa's Philip wrote:
Great news! as reported on ITV 10 o clock news - Home Office has approved a 3 month trial of medical cannabis for Alfie Dingley1 Just shows what good publicity can do.....
 
 
On 25 Oct 2018 at 9:47pm Namby wrote:
I stumbled upon this thread by fluke and what a difference 9 months has made i think the UK is possibly actually making positive steps towards a sensible cannabis legislation that matches both scientific research and public sentiment!.... We'll see...

Check it out here »
 
 
On 25 Nov 2018 at 1:55pm KingBounty wrote:
Is a medical cannabis really a thing? I mean, I see it's being legalized but are there enough researches?

Check it out here »
 
 
On 5 Jul 2019 at 10:52am Cromwellian wrote:
And a year on across Europe and Germany in particular it is slowly becoming increasingly legal. What a time to be alive.

Check it out here »


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